My Life as a wife, mom and person living with 22q.
Bella has asked me to invite as many as I can to come out and cheer Bella on. This will be her very last girls on the run race as she moving on to middle school (6th grade) in the Fall.
Thursday May 23, 2019 at 6:00 pm the race starts.
This will be Bella 3rd time running this race
If you can not be there in person this is the spot to cheer her on.
#running #Girlsontherun #22qrun #22q
May 1st is Dr day
Thank you to the Drs who have cared for Bella and I. Not only Dr and specialist but also Ot Pt and speech
staff nurses medical assitances and cleaning people who kept these places clean for drs to do their jobs.
Bella made it to 12 years old (April 27) it has been an amazing journey. Read all about it on our blog
Bella is offically over the hump where kids who have 22q are friagle age 10 is usual cut off point that helps dr decided if she is friagle for life. Bella has beat the odds and defied every stigma.
Hey, I am Kid! Running, playing and learning my way through life. 22q is no joke and my parents have been there ever step of the way!
Iep Journey a mom’s 22q confessions.
History of 22q, Di George, VCFS and a Fish test.
What is FISH?
How does FISH work?
What is FISH used for?
Read Story about Amazing people I have met!