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Welcome

 
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Click image for Story!

Amanda's Story

My Life as a wife, mom and person living with 22q.

Featured
22q at the zoo Michigan
Happy Mother's Day
Girls on the run 5k come cheer Bella on

Hello friends,

Bella has asked me to invite as many as I can to come out and cheer Bella on. This will be her very last girls on the run race as she moving on to middle school (6th grade) in the Fall. 

Thursday May 23, 2019 at 6:00 pm the race starts. 

This will be Bella 3rd time running this race

If you can not be there in person this is the spot to cheer her on.  

 

 #running #Girlsontherun #22qrun #22q 

 

Go Bella Go over coming challanges one step at a time
Go Bella Go over coming challanges one step at a time
22q and parent concerns worries and fears
22q and parent concerns worries and fears
GreenField Villiage and Henry Ford field trip.
GreenField Villiage and Henry Ford field trip.
May 1st is Doctor day

May 1st is Dr day

Thank you to the Drs who have cared for Bella and I. Not only Dr and specialist but also Ot Pt and speech 

staff nurses medical assitances and cleaning people who kept these places clean for drs to do their jobs.

Bella made it to 12 years old (April 27) it has been an amazing journey. Read all about it on our blog

Bella is offically over the hump where kids who have 22q are friagle age 10 is usual cut off point that helps dr decided if she is friagle for life. Bella has beat the odds and defied every stigma.

 

 

 

 

 

 

Stress Awareness
Stress Awareness
March 26 th International Epilepsy day
March 26 th International Epilepsy day
Happy Easter to our friends and family!
Happy Easter to our friends and family!
Gastroparesis
Gastroparesis
Asthma
Asthma
Weight loss journey
Weight loss journey
hypocalciuma and DiGeorge 22q11.2 deletion syndrome
hypocalciuma and DiGeorge 22q11.2 deletion syndrome
My why on why I blog
My why on why I blog
Schizophrenia and Chromosome 22q called 22q11.2 deletion syndrome Digeorge
Schizophrenia and Chromosome 22q called 22q11.2 deletion syndrome Digeorge
Genetic Diagrams of Chromosome 22q understanding why no two are the same
Genetic Diagrams of Chromosome 22q understanding why no two are the same
Some Dos and Don’ts of communicating with patients with rare diseases
Some Dos and Don’ts of communicating with patients with rare diseases
National Public Health week #NPHW raise awareness for people living with rare disease such as DiGeorge syndrome 22q11.2 deletion syndrome
National Public Health week #NPHW raise awareness for people living with rare disease such as DiGeorge syndrome 22q11.2 deletion syndrome
Influencer marketing
Influencer marketing
This is me Adult with Digeorge 22q
This is me Adult with Digeorge 22q

https://www.facebook.com/Mommiesquietplace22q

Autism Awareness Month
Autism Awareness Month
National Poetry month April
National Poetry month April
National Garden Month
National Garden Month
Meet and Greet with Pamela Marks
how do we get doctors to comprehend that a mom without a phd knows more than they do ?
how do we get doctors to comprehend that a mom without a phd knows more than they do ?
self-love, self-compassion and saying "no". Setting healthy boundaries.
self-love, self-compassion and saying "no". Setting healthy boundaries.
Happy Spring Everyone!
Happy Spring Everyone!
50/50 chance of passing 22q on
50/50 chance of passing 22q on
Fear no more anxiety and I
Fear no more anxiety and I
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Click image for Story!

Bella's Story

Hey, I am Kid! Running, playing and learning my way through life. 22q is no joke and my parents have been there ever step of the way!

Featured
Sleep awareness
Sleep awareness
27 anger tools and techniques to help kids with 22q
27 anger tools and techniques to help kids with 22q
Leg pains and 22q
Leg pains and 22q
St Patrick's Day from Bella
St Patrick's Day from Bella
Bella donated 602 dollars this year for the (American Heart Association) #heartwareness (22q google it)
Bella donated 602 dollars this year for the (American Heart Association) #heartwareness (22q google it)
Bella's IEP Journey- Confessions of a 22q mom
Bella's IEP Journey- Confessions of a 22q mom

Iep Journey a mom’s 22q confessions.

Answering readers questions Velopharyngeal Insufficiency (VPI) and Apraxia
Answering readers questions Velopharyngeal Insufficiency (VPI) and Apraxia
First day back to school outfit
First day back to school outfit
school has been out and summer fun starts
school has been out and summer fun starts
Happy Fathers Day-2018
Happy Fathers Day-2018
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Click image for Story!

I have 22q?

History of 22q, Di George, VCFS and a Fish test.

Featured
What is 22q? DiGeorge velocardiofacial syndrome 22q11.2 deletion
What is 22q? DiGeorge velocardiofacial syndrome 22q11.2 deletion

whatis22q?

What is a fish test? 22q fish test
What is a fish test? 22q fish test

What is FISH?

  • How does FISH work?

  • What is FISH used for?

The history of Velo-cardio-facial and DiGeorge syndrome (22q11.2deletionsyndrome)
The history of Velo-cardio-facial and DiGeorge syndrome (22q11.2deletionsyndrome)
What is Velo-cardio-facial syndrome (VCFS)?
What is Velo-cardio-facial syndrome (VCFS)?
Click image for Story!

Click image for Story!

Interviews

Read Story about Amazing people I have met!

Featured
Meet and Greet Amy: The Fibromyalgia worrior
Meet and Greet Amy: The Fibromyalgia worrior
Meet n Greet with Pamela a blogger
Meet n Greet with Pamela a blogger
Meet and Greets Mommies Quiet Place stories of hope
Meet and Greets Mommies Quiet Place stories of hope
Meet & Greet Kim and let's talk about IVF
Meet & Greet Kim and let's talk about IVF
Meet and Greet With Rebecca Osberg an adult with 22q
Meet and Greet With Rebecca Osberg an adult with 22q
Feature on www.22qfamilyfoundation.org
Feature on www.22qfamilyfoundation.org
Meet and Greet with Diana and her family
Meet and Greet with Diana and her family
Meet and Greet with Amy Clungston
Meet and Greet with Amy Clungston
Meet and Greet with Jennifer Bales
Meet and Greet with Jennifer Bales
Meet and Greet with Michelle Padilla The Awareness Show
Meet and Greet with Michelle Padilla The Awareness Show
Meet and Greet With Mary Madalene Yaroscavitch
Meet and Greet With Mary Madalene Yaroscavitch