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Welcome

 
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Click image for Story!

Amanda's Story

My Life as a wife, mom and person living with 22q.

Featured
trip to U of M this week
symptoms of 22q11.2 deletion syndrome?
symptoms of 22q11.2 deletion syndrome?
Let your light shine bright
Let your light shine bright
Bella hair cut
Bella hair cut
keeping kids busy in the summer
keeping kids busy in the summer
Recovery 12 steps program
Recovery 12 steps program
Happy Father's Day


 

Bella offically is a middle schooler
Bella offically is a middle schooler

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One more half day left of school
One more half day left of school


 
How to have a garden living in an apartment

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22q at the zoo Michigan
Self care- Having a child with 22q is a lot of work so it is when you have 22q too.
Girls on the run 5k come cheer Bella on
Go Bella Go over coming challanges one step at a time
Go Bella Go over coming challanges one step at a time
22q and parent concerns worries and fears
22q and parent concerns worries and fears
GreenField Villiage and Henry Ford field trip.
GreenField Villiage and Henry Ford field trip.
May 1st is Doctor day
Stress Awareness
Stress Awareness
March 26 th International Epilepsy day
March 26 th International Epilepsy day
Happy Easter to our friends and family!
Happy Easter to our friends and family!
Gastroparesis
Gastroparesis
Asthma
Asthma
Weight loss journey
Weight loss journey
hypocalciuma and DiGeorge 22q11.2 deletion syndrome
hypocalciuma and DiGeorge 22q11.2 deletion syndrome
My why on why I blog
My why on why I blog
Schizophrenia and Chromosome 22q called 22q11.2 deletion syndrome Digeorge
Schizophrenia and Chromosome 22q called 22q11.2 deletion syndrome Digeorge
Genetic Diagrams of Chromosome 22q understanding why no two are the same
Genetic Diagrams of Chromosome 22q understanding why no two are the same
Some Dos and Don’ts of communicating with patients with rare diseases
Some Dos and Don’ts of communicating with patients with rare diseases
National Public Health week #NPHW raise awareness for people living with rare disease such as DiGeorge syndrome 22q11.2 deletion syndrome
National Public Health week #NPHW raise awareness for people living with rare disease such as DiGeorge syndrome 22q11.2 deletion syndrome
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Click image for Story!

Bella's Story

Hey, I am Kid! Running, playing and learning my way through life. 22q is no joke and my parents have been there ever step of the way!

Featured
Back to school shopping lists for Middle school. cheap or free is my goal
Leg pains
Leg pains

22q and attendance
22q and attendance
Sleep awareness
Sleep awareness
27 anger tools and techniques to help kids with 22q
27 anger tools and techniques to help kids with 22q
Leg pains and 22q
Leg pains and 22q
St Patrick's Day from Bella
St Patrick's Day from Bella
Bella donated 602 dollars this year for the (American Heart Association) #heartwareness (22q google it)
Bella donated 602 dollars this year for the (American Heart Association) #heartwareness (22q google it)
Bella's IEP Journey- Confessions of a 22q mom
Bella's IEP Journey- Confessions of a 22q mom

Iep Journey a mom’s 22q confessions.

Answering readers questions Velopharyngeal Insufficiency (VPI) and Apraxia
Answering readers questions Velopharyngeal Insufficiency (VPI) and Apraxia
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Click image for Story!

I have 22q?

History of 22q, Di George, VCFS and a Fish test.

Featured
What is 22q? DiGeorge velocardiofacial syndrome 22q11.2 deletion
What is 22q? DiGeorge velocardiofacial syndrome 22q11.2 deletion

whatis22q?

What is a fish test? 22q fish test
What is a fish test? 22q fish test
The history of Velo-cardio-facial and DiGeorge syndrome (22q11.2deletionsyndrome)
The history of Velo-cardio-facial and DiGeorge syndrome (22q11.2deletionsyndrome)
What is Velo-cardio-facial syndrome (VCFS)?
What is Velo-cardio-facial syndrome (VCFS)?
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Interviews

Read Story about Amazing people I have met!

Featured
Accepting guest blog posts- meet and greet style q and a
Accepting guest blog posts- meet and greet style q and a
Meet Adam Aelick (Male with 22q)
Meet Adam Aelick (Male with 22q)
Meet Amy: The Myalgia Fibro Warrior
Meet Amy: The Myalgia Fibro Warrior
Meet Pamela: A Blogger
Meet Pamela: A Blogger
Meet and Greets Mommies Quiet Place stories of hope
Meet and Greets Mommies Quiet Place stories of hope
Meet & Greet Kim and let's talk about IVF
Meet & Greet Kim and let's talk about IVF
Feature on www.22qfamilyfoundation.org
Feature on www.22qfamilyfoundation.org
Meet and Greet with Diana and her family
Meet and Greet with Diana and her family
Meet and Greet with Amy Clungston
Meet and Greet with Amy Clungston
Meet and Greet with Jennifer Bales
Meet and Greet with Jennifer Bales
Meet and Greet with Michelle Padilla The Awareness Show
Meet and Greet with Michelle Padilla The Awareness Show
Meet and Greet With Mary Madalene Yaroscavitch
Meet and Greet With Mary Madalene Yaroscavitch