First day back to school outfit

Hello friends.

Happy first day back to school everyone.

Bella had such a fun relaxing summer she is a tad annoyed that it is over but glad that the first day of school is warm and sun was shining bright. When I took this photo it was just before the sun was fully up. We wake up around 5:30 am. I did her hair the night before isn't it cute there is a super cute braid in the back. Here in Michigan it is going to be 88 degrees so we decided to keep her first day of back to school look simple and easy. The lunch bag is one of the wins I just won in a sweep contest it's a cooler bag which I love it will keep Bella's lunch nice and cold which is a good thing it will be 88 degrees later on. The school supplies are just the general school supplies we didn't have to go all out as we had most of the stuff already for her.

What Bella is wearing. The top Go Blue (Yay Michigan)  the pants are justice and the shoes are new balance with her foot inserts see post about those here https://www.mommiesquietplace.com/isabellasjourney/2018/4/21/shoe-inserts-called-chipmuncks

and the glasses are Nike from last year (before their crazy pr issues) see trending topics on Twitter about that. For Bella's hair we just did a simple cute braid in the back. and a bit of lip gloss to prevent dry lips and help with a boost of self confidence.

The Go blue top is from the gift shop at the c.s motts children's hospital where we visit at least once or twice a year. Our most recent visit went well and we go back again in Nov for Bella's sleep study . This will help decided if we are going to finally go a head and take adenoids and tonsils out as we don't think Bella needs to have the vpi surgery. She is doing so well with her scores and no one really notices her speech differences unless I point it out. She still has body temp regulator issues and doing well as long as we keep on top of it all.

I have her appointments set up already back to back on Tuesday so she returns to school Tuesday afternoons except for this first week of school we are keeping it super simple and I plan no appointments. We did pretty well with them this summer. Bella graduated out of Ot and speech. Now all we have is psychology for the adhd panic anxiety treatment and working on coping skills for organizing at school and leg pains. Then she has pt which help with the leg pains. The fitbit on her wrist helps us track her sleep steps and calories burn so we can stay on top of how she is physically doing sometimes it's easier to tell by looking at the fitbit dashboard then looking into the reactions she has and play the guessing game. We have a case manager in the doctors office who is helping with her care as well now which takes a bit of a load of from my plate.

I am so looking forward to this year. It is Bella's last year in elementary school and she get's to sit on the back of the bus.

My big girl is all grown up! She is the last Ripsam kid in school her siblings all 3 have graduated high school and it's just her left. I'm so proud of how far she has come

 

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Happy Saint Patrick's Day Youtube video.

 

Happy Saint Patrick Day everyone

It feels like it has been ages since I wrote an actual blog post.

If you been following along on social media we were sick all of us for Dec, Jan and Feb we had so many missed days of school.

Bella had more doctors visits then I ever care for her to have and and even ordered Bella's orthopedic shoe inserts.

These doctors appointments are what keeps her doing as well as she has no matter how much you can say you know what 22q is if you don't attend these appointments take a child to as many doctors as we do I mean she has one doctor for every body part and as much as I wish I was exaggerating I am not when I say from head to toe Bella has a specialist. 

when you are missing pieces of your Dna you have to stay on top of it all and it's not easy. Sometimes it is a full time job. The paperwork the back and forth to doctors. Trying to figure out meals and plan family events is not as simple as not having these doctor visits. keeping her grades up is not easy it takes an entire team. 

I personally thank everyone who goes out of their way to help Bella and has Bella's best interests both physically and emotionally as those are the areas she struggles in not just educationally.

Lot's of aqua therapy, Physical therapy, Psychology and we are starting up with Occupational therapy. All of this at a rehab hospital and all of this in the mix of Bella getting the flu or picking up something this winter each and every time I got her better it seems as though she would look at another sick kid at school and pick something else up. It was never ending.

We raised $605 for the American Heart Association with the help of some of my friends and our supporters online. Which I want to say that Bella class is top earners and they earned  a Wii party. I only wish we had a few more supporters locally. 

With family scattered between mine in Toronto and Adam's family in fl we are doing this on our own for the most part and with out respite or an aid. We have a few church friends we can call on and I am forever greatful for that and their friendships. 

Girls on the run has started back up and we both are training for a 5k race you might have seen my awful times I posted on Instagram. 

I just want to get back into shape tone up drop a few pounds and complete the 5k with out coming in almost dead last. 

Last year we did the race I came in so far behind infact Bella was done 30 minutes a head of me. That's how slow I was at running. I more like jogged and walked the 5k.

This year I want to be just a little faster. I am using my fitbit and logging in my food tracking my sleep and eating habits. Adam has even joined in on the diet plan he has to watch his calories and loose weight too. All this while Bella has to some how gain weight. She eats and burns off her calories fast like a runner. 

Even while Bella has struggles with leg pains from the cerebral Palsy and the other issues we are dealing with that come with the 22q we are moving along forward with treatments.

Bella struggles with loud sounds and the stress of school has started to weigh in on her trying to catch up with school work because we have to attend these appointments every Tuesday which we have been doing since September. With her illness she manage to have 25 extra absences but a doctors note and managing to some how keep sanity.

We wanted to update everyone along the way but there was not enough hours in a day.

As you might have seen on Instagram we have a new couch and I finally got a dslr Camera Feb 10 was my birthday and Feb 23 was our 13 year anniversary of the day Adam and I fist met.

As a thank you to all of you who supported Bella in her Hoops for heart we made a Happy Saint Patrick's Day Video see video here . https://youtu.be/iRcCXNGbdDY

For dinner we are making corn beef and cabbage.

I will leave you guys with my favorite Saint Patrick's day quote.

“Christ beside me, Christ before me, Christ behind me, Christ within me, Christ beneath me, Christ above me.” -St. Patrick

what have you been up to? What is your favorite Saint Patricks Day quote?