Happy Saint Patrick's Day Youtube video.

 

Happy Saint Patrick Day everyone

It feels like it has been ages since I wrote an actual blog post.

If you been following along on social media we were sick all of us for Dec, Jan and Feb we had so many missed days of school.

Bella had more doctors visits then I ever care for her to have and and even ordered Bella's orthopedic shoe inserts.

These doctors appointments are what keeps her doing as well as she has no matter how much you can say you know what 22q is if you don't attend these appointments take a child to as many doctors as we do I mean she has one doctor for every body part and as much as I wish I was exaggerating I am not when I say from head to toe Bella has a specialist. 

when you are missing pieces of your Dna you have to stay on top of it all and it's not easy. Sometimes it is a full time job. The paperwork the back and forth to doctors. Trying to figure out meals and plan family events is not as simple as not having these doctor visits. keeping her grades up is not easy it takes an entire team. 

I personally thank everyone who goes out of their way to help Bella and has Bella's best interests both physically and emotionally as those are the areas she struggles in not just educationally.

Lot's of aqua therapy, Physical therapy, Psychology and we are starting up with Occupational therapy. All of this at a rehab hospital and all of this in the mix of Bella getting the flu or picking up something this winter each and every time I got her better it seems as though she would look at another sick kid at school and pick something else up. It was never ending.

We raised $605 for the American Heart Association with the help of some of my friends and our supporters online. Which I want to say that Bella class is top earners and they earned  a Wii party. I only wish we had a few more supporters locally. 

With family scattered between mine in Toronto and Adam's family in fl we are doing this on our own for the most part and with out respite or an aid. We have a few church friends we can call on and I am forever greatful for that and their friendships. 

Girls on the run has started back up and we both are training for a 5k race you might have seen my awful times I posted on Instagram. 

I just want to get back into shape tone up drop a few pounds and complete the 5k with out coming in almost dead last. 

Last year we did the race I came in so far behind infact Bella was done 30 minutes a head of me. That's how slow I was at running. I more like jogged and walked the 5k.

This year I want to be just a little faster. I am using my fitbit and logging in my food tracking my sleep and eating habits. Adam has even joined in on the diet plan he has to watch his calories and loose weight too. All this while Bella has to some how gain weight. She eats and burns off her calories fast like a runner. 

Even while Bella has struggles with leg pains from the cerebral Palsy and the other issues we are dealing with that come with the 22q we are moving along forward with treatments.

Bella struggles with loud sounds and the stress of school has started to weigh in on her trying to catch up with school work because we have to attend these appointments every Tuesday which we have been doing since September. With her illness she manage to have 25 extra absences but a doctors note and managing to some how keep sanity.

We wanted to update everyone along the way but there was not enough hours in a day.

As you might have seen on Instagram we have a new couch and I finally got a dslr Camera Feb 10 was my birthday and Feb 23 was our 13 year anniversary of the day Adam and I fist met.

As a thank you to all of you who supported Bella in her Hoops for heart we made a Happy Saint Patrick's Day Video see video here . https://youtu.be/iRcCXNGbdDY

For dinner we are making corn beef and cabbage.

I will leave you guys with my favorite Saint Patrick's day quote.

“Christ beside me, Christ before me, Christ behind me, Christ within me, Christ beneath me, Christ above me.” -St. Patrick

what have you been up to? What is your favorite Saint Patricks Day quote?

Jump Rope for Heart and Hoops for heart is a fundraising and physical activity program.

Bella has asked family, friends and strangers to donate to the cause hoops for heart. Its a program that takes place at school that raises money for the American Heart Association. It teaches school aged children how to keep fit and healthy, all while having fun and raising vital funds for heart disease research and education.

Bella hoops.JPG

Over the past 4 years Bella has raised  all of her donations online. Bella has yet to meet the 10 donor goal. Bella is excited every time someone donates she jumps up and down and does a happy dance and ask who donated. Every single day Bella kept asking me to post online and see if any more of my friends on Facebook donated. Bella said there is over 2,000 friends on your list and only 5 donated what's wrong mom?

I felt for her so I am writing to ask family friends and yes even strangers if they can donate any amount to help Bella out.

Bella hoops.JPG

Bella dreams big and has her eyes set on the $1,000 dollar donation because she knows that will make a huge impact and help others out who have the same genetic disorder she has. Bella has been okay with only a mild heart murmer and a few other health issues not heart related but so many of our 22q friends and family have CHD congenital heart defects some even have to have open heart surgery's if you don't know what 22q deletion is I share about our journey with it here on my website. You can also Google 22q and search for it too learn more

. Bella beat her last years amount $150 and has raised $235.00 this year with some of your help Bella needs everyone to pitch in and help her get to top earner and reach her dream goal of earning $1,000.
 

here is Bella's direct link where you too can donate.

https://www2.heart.org/site/Donation2?idb=44265695&2530.donation=form1&df_id=2530&FR_ID=3193&mfc_pref=T&PROXY_ID=4442438&PROXY_TYPE=20

 

#chdawareness #22qawareness #girlbossmoments #fundraising #scaresquad #hearthero #donorschoose #lifestyleblogger #life #kids #hoopsforheart #americanheartassociation #goals Thank you for donating to the American Heart Association. With your life-saving donation, we can build healthier lives, free of cardiovascular disease and stroke.

You're Supporting Heart-Healthy Lives

Thank you for making a donation on behalf of Isabella Ripsam. You're helping me get one step closer to my goal of $1,000.00.