Anonymous by Greer Hendricks and Sarah Pekkanen

disclamier: I recieved this copy from Netgalley in exchange for my thoughts on the book but all opinions are my own

Anonymous.JPG

Remember the rules: Be open and truthful, and avoid pivoting away from any embarrassment or pain these questions provoke.

What I loved about the book is that This book grabbed me from the very beginning of the story. With character I could relate to and a complelling plot. I could not put the book down. A twenty eight year old woman sneaks herself into an ethics and morality study in order to earn some extra income. I was able to immediately put myself in her shoes. The initial questions had me wondering how I would answer.

The chapters alternate between the woman and the doctor heading up the study. It quickly becomes a fast paced ride. Definitely entertaining. There are some real twists so that the tension keeps getting ratcheted up. It’s a hard book to put down. I can even see this being made into a movie.

Don’t look for believability here. But that doesn’t mean there aren’t some interesting concepts being explored. Power. Trust.

Jessica is such a well thought out character. Out of her depth, but a real fighter. No dummy, but she’s up against a master. I was entranced trying to figure out how she would extract herself from this game of cat and mouse.

I would love to know how Hendricks and Pekkanen write together because the finished product is seamless.

If you like dark psychological thrillers, this one’s for you!

My thanks to netgalley and St. Martin’s Press for an advance copy of this book.

The Dinner List By Rebecca Serle

Have you ever asked yourself or anyone else the question What five people would you invite to dinner if you could have anyone. Living or dead, famous or family, past or present, real or fictional, people you know or someone you've never met - those are a few of the questions we have contemplated when making our ultimate dinner list. Years ago, thirty year old Sabrina and her best friend, Jessica, make a list of five people they want at their dinner. Years later, Sabrina's list becomes a reality at her 30th birthday dinner. Rebecca Serle's book, The Dinner List, invites us to take a seat at the table for a lively dinner full of conversation. Sabrina, along with Jessica, spends the evening with a professor from the past, her absentee father, her ex-fiancee and Audrey Hepburn. Why Audrey Hepburn? The real question should be, why not Audrey Hepburn. It's hard not to fall in love with this story as you will become invested in each character's story. Serle's character development is rich and deep. You will feel yourself laughing at times as well as shedding a few tears with each one of these characters and their story. Former North Carolina State basketball coach, Jim Valvano, once said, "We should do three things everyday of our life. Number one is laugh, you should laugh every day. Number two is to think, we should spend some time in thought, and number three is you should have your emotions moved to tears." The book was a great read for anyone who wishes to day dream and get lost in a book for a few hours. I could not put the book down and read it in about a week. I'm a busy mom and wife so I'm sure if I had the entire day to sit an read I could have. I highly suggest The dinner list to put on your want to resd list Disclamer: I recieve an advance copy of this book from Netgalley. My reviews are unbiased and you can follow all of my reviews on Goodreads. If you wish to send me an advance copy or early edition of your book for my review I would love to hear form you. Send a email via the contact me button on the top menu bar. Thanks so much for reading

The dinner List.JPG

The Mindful child- how to help your kid manage stress and become happier, kinder and more compassionate By Susan Kaiser Greenland

I really enjoyed this book. We've been struggling with helping Bella become more mindful and aware of her actions and that actions have a natural consequence. Learning reather then punishing with a bunch of different coping skills and mindful exercies you can do with your child together or sepeartly. Bella has ADHD with some degree of anxiety, sensory defensiveness, and other quirks and this book was suggested to use by Bella's therapist. I have been using the coping cat system combind with mindfulness tricks and suggestions from this book. My daughter now has a tool box of tricks she can refer to and go to when she is having a stressed out moment. Instead of major meltdowns and power struggles we tell her to go pcik something from the list of coping stragties she can do. If you want to know the list suggested I would suggest reading this book. My favorite is making connections between mind body and breath we have used a breathing skill that just has helped both of us calm when we become worried or anxious about something.

The Mindful child.JPG

Auggie & Me R.J Palacio

Auggieandme.jpg

was nearly crying the whole time I read this out loud to my daughter. The book Auggie and me picks up right where Wonder leaves off, but this time the plot revolves around the complex and tender lives of the other characters We see how challenging growing up can be. Through the eyes of Julian, Christopher and Charlotte we are reminded to be kind and that friendships and families and school can be hard, but we all make it through somehow.

If you read and loved Wonder then get your hands on this next series of stories.

I haven't had a book series that my daguter and I both got sucked itno reading together in a long time.

Wonder by R.J Palacio

A book that will fill you with all of the emotions, Tears of Sadness, joy, anger and hope

A book that will fill you with all of the emotions, Tears of Sadness, joy, anger and hope

Wonder by R.J Palacio Review by Amanda Ripsam

This book is a keeper and I am sure I will want to reference again and again. I have a genetic disorder where I have some facial differences called velocardiofacial syndrome or 22q for short. I also have a daughter with the same disorder. I read this book to her and I had to choke back tears as I often take my child to dr visits I am thankful my child did not have school social life as hard as Auggie has had. No child disabled, disfigured or not should feel that way and singled out at school ever. Seeing from the other kids side really had me going for the tissues and wiping tears as I read to my daughter. We don't look very different with our genetic condition but have had the dr visits and the struggles with school just not to that kind of extreme. Wonder reminded me to be thankful in all things that it could be worst and it allowed for conversation starters to open up and have heart to heart about if kids see her that way and they really don't even notice anything wrong just that Bella learns a little difference. I was encouraged to continue blogging our journey and story knowing how much impact this book has had on people who saw the movie or read the book. The other book Auggie and me is a must read as well. I wish I could go into details but I would not want to spoil the book. You will laugh, cry and become shocked at some of the things in the book or movie.

The Girl He Used to Know by Tracey Gravis Graves

The girl he used to know by Tracey Gravis Graves

A wonderfully written novel for anyone who has ever felt like they don't belong. I read it in two days the characters are so well developed instant relatablity a must read novel Here is just a small sample of one of many favorite parts.

Chicago 2001 - Annika is picking up groceries when she hears a familiar voice call her name. Though she only sees the person out of the corner of her eye, she knows it’s him…Jonathan. It’s been ten years since she’s seen that face or heard that voice. She wants to run but a voice inside her head tells her to stay put.

“Don’t run, take responsibility, be yourself”

I just kept reading you will want to as well

Ad thanks so much for the advance readers edition from @SheSpeaksUp Be sure not to miss the Twitter Part for a chance to win a door prize "Win books and gift cards! Join me at the #ReadTheGirl Twitter party with @SheSpeaksUp on Tues 4/2 at 2pm ET

Missing Genetic Pieces stragties for living with vcfs

Missing Genetic Pieces: Strategies for Living with VCFS, the Chromosome 22q11 Deletion By Sherry Baker Gomez

 

By Sherry Baker Gomez

 

Cover Design and Illustrations

 by Kas Winters

 

Foreword by

Dr. Robert J. Shprintzen

A book based off of Sherry Baker Gomez account of her life with her son with 22q

• A History of VCFS

• A Description of VCFS, List of 187+ Anomalies associated with 22q11 Deletion

• A list of Medical Specialists

Systems Affected: Heart, Pulmonary and Respiratory, Kidneys, Anal Anomalies, Ears, Eyes, Facial Features, Hormone Difficulties, Immune System, Dental, and Palate

Feeding and Pain Issues

Development: Developmental Issues and Stages, Newborn Conditions, Potty Training, Psychophysiology, Biofeedback, Emotional Development and Social Skills

Education: Accessing services, Individual Education Plans (IEP), Non-Verbal Learning Disorder (NVLD), Grade School Ages, I.Q. Tests scores and Neuropsychology

Speech: Speech and VCFS, Teaching Babies Sign Language, Central Auditory Processing, Fisher's Auditory List

Behavioral Problems: Behavior list and Puberty

ADHD

Psychological Issues: Bipolar and Schizophrenia

The COMT Gene: Pain and OCD (Obsessive Compulsive Disorder)

Negotiations

Advocacy

Housing and Group Homes

Finances and Trusts

Support Systems for Families

Stories from Families Living with VCFS

Marriage, Relationships and VCFS

Parent to Parent Talk

Parents Speak Out: Tips from Families with VCFS Children

List of Medications

Medical Dictionary

My Review:I am a adult living with 22q11.2 deletion syndrome I am also a parent to a child with 22q11.2 deletion syndrome. I have a father and three siblings with 22q as well. I have to say that I found the book to be my go to suggestion for new parents of 22q to read. there isn't much on adults with the disorder but reading about another mothers struggles helped me feel like I was not the only one who had struggles in raising a child with 22q. I mentor parents and highly recommend this book because it provided incites into what moms experience and offers resources and helpful tips on how to cope with a new disgonses. I suggest this book to the parents I mentor

Where to buy:

https://www.amazon.com/Missing-Genetic-Pieces-Sherry-Baker-Gomez/dp/097453580X

 

 

 

Velo-Cardio-Facial Syndrome, Volume I (Genetic Syndromes and Communication Disorders)

This Book has really helped me to understand the Medical terms and other stuff the doctor talk about.

Buy this book Velo-Cardio-Facial Syndrome, Volume I

With an estimated human population prevalence of 1:2000, Velo-Cardio-Facial Syndrome (VCFS) is the second-most common multiple anomaly syndrome in humans and almost all children with the syndrome have speech and language impairments that are generally recognized to be complex and difficult to treat. However, the authors of this new book contend that treatment techniques are not at all complex and perceived problem arise from a basic lack of understanding, and lack of education in graduate courses. To demonstrate and to provide clinicians with expert guidance, they have produced here a comprehensive combination of text and video demonstrating the clinical features of Velo-Cardio-Facial Syndrome (VCFS); the communication phenotype in VCFS; the natural history of speech and language in VCFS; diagnostic procedures necessary for assessing speech and language disorders in VCFS; the treatment of speech and language impairment in VCFS; and outcomes, demonstrated by video on an accompanying DVD.

 

Velo-Cardio-Facial Syndrome Volume 2: Treatment of Communication Disorders (Genetic Syndromes and Communication Disorders)

This Book has really helped me to understand the Medical terms and other stuff the doctor talk about.

Buy this book  Velo-Cardio-Facial Syndrome Volume 2

With an estimated human population prevalence of 1:2000, Velo-Cardio-Facial Syndrome (VCFS) is the second-most common multiple anomaly syndrome in humans and almost all children with the syndrome have speech and language impairments that are generally recognized to be complex and difficult to treat.
To demonstrate and to provide clinicians with expert guidance, the authors have produced a comprehensive two-volume set with a combination of text and video demonstrating the clinical features of Velo-Cardio-Facial Syndrome (VCFS); the communication phenotype in VCFS; the natural history of speech and language in VCFS; diagnostic procedures necessary for assessing speech and language disorders in VCFS; the treatment of speech and language impairment in VCFS; and outcomes, demonstrated by video on an accompanying CD-ROM to Volume II.
Volume II of this set opens with information of aspects of speech and language and the difficulties most often associated with VCFS. Authors also consider how these difficulties interact with each other. Chapter two describes the aspects of articulation and resonance, how they are best evaluated, and on surgical management. In Chapter three, general principles are outlined on how to make articulation therapy successful for children with cleft palate, VCFS, or both, many of which apply to language therapy and other behaviors, as well. The last chapter offers insights into prevention of the abnormal articulation patterns that tend to develop and how to guide children through stages of language development.
The DVD includes all images from the book, along with 80 video clips that present normal and abnormal conditions and illustrate anomalies in VCFS through nasopharyngoscopy and videofluoroscopy examples

 

Educating Children with Velo-Cardio-Facial Syndrome (Also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome) (Genetic Syndromes and Communication Disorders)

This is a book which I have found to be very helpful. Working with the teachers at my daughter school and in my personal life.

Buy the Book Educating Children with Velo-Cardio-Facial Syndrome (Also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome)

Velo-cardio-facial-syndrome, also known as 22q11.2 deletion syndrome and DiGeorge syndrome, is relatively new the genetic test to determine if a child has it has only been available since 1994. Educating Children with Velo-Cardio Facial Syndrome (also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome), Second Edition, effectively blends the thoughtful research that has transpired within the past 15 years with practical and current educational strategies to better meet the needs of children with VCFS and other developmental disabilities.
To first address the scientific information that is needed to understand the syndrome and the implications of current research, expert contributors present the results of studies involving brain abnormalities, language/learning profiles and psychiatric/behavioral difficulties. These valuable chapters are written in a reader-friendly manner to help parents, professionals, and teachers gain useful and necessary comprehension of the unique characteristics of the VCFS population.
The second part of the book is a practical guide to educating a child with VCFS from birth through adulthood. Divided into the various stages of development from preschool to adulthood, it includes information regarding the necessary tests special education teams should run, typical difficulties associated with learning, changes that occur with ability as the child matures (drop in IQ scores and increased learning challenges), as well as behavioral problems in the school setting. Each section includes discussions of the learning challenges and accommodations that can be used at school and at home during that stage of maturity. The authors also present meaningful advice on issues such as friendships, private vs. public school placement, job training, and other pertinent decisions that affect the VCFS child's everyday life.
For the second edition, the author has added fresh and updated content. A partial list of new material includes:
  • The most recent research and studies to make the text as up-to-date as possible
  • Expanded and enhanced coverage of bullying and the social/emotional aspects of VCFS
  • More information on common core standards and standardized testing for children with disabilities
  • Homeschooling and other placement alternatives
  • Executive functioning deficits and their impact in the classroom
  • Dealing with problem behaviors
  • Issues related to anxiety and school success
  • Cognitive remediation and new treatment strategies
  • New math and reading remediation techniques
  • Expanded section on the very young child
With its expanded content, as well as contributions from some of the most highly regarded experts in the field, Educating Children with Velo-Cardio Facial Syndrome (also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome), Second Edition is an essential resource for teachers, parents, physicians, and therapists of children with velo-cardio-facial-syndrome.