Wonder by R.J Palacio

A book that will fill you with all of the emotions, Tears of Sadness, joy, anger and hope

A book that will fill you with all of the emotions, Tears of Sadness, joy, anger and hope

Wonder by R.J Palacio Review by Amanda Ripsam

This book is a keeper and I am sure I will want to reference again and again. I have a genetic disorder where I have some facial differences called velocardiofacial syndrome or 22q for short. I also have a daughter with the same disorder. I read this book to her and I had to choke back tears as I often take my child to dr visits I am thankful my child did not have school social life as hard as Auggie has had. No child disabled, disfigured or not should feel that way and singled out at school ever. Seeing from the other kids side really had me going for the tissues and wiping tears as I read to my daughter. We don't look very different with our genetic condition but have had the dr visits and the struggles with school just not to that kind of extreme. Wonder reminded me to be thankful in all things that it could be worst and it allowed for conversation starters to open up and have heart to heart about if kids see her that way and they really don't even notice anything wrong just that Bella learns a little difference. I was encouraged to continue blogging our journey and story knowing how much impact this book has had on people who saw the movie or read the book. The other book Auggie and me is a must read as well. I wish I could go into details but I would not want to spoil the book. You will laugh, cry and become shocked at some of the things in the book or movie.

The Girl He Used to Know by Tracey Gravis Graves

The girl he used to know by Tracey Gravis Graves

A wonderfully written novel for anyone who has ever felt like they don't belong. I read it in two days the characters are so well developed instant relatablity a must read novel Here is just a small sample of one of many favorite parts.

Chicago 2001 - Annika is picking up groceries when she hears a familiar voice call her name. Though she only sees the person out of the corner of her eye, she knows it’s him…Jonathan. It’s been ten years since she’s seen that face or heard that voice. She wants to run but a voice inside her head tells her to stay put.

“Don’t run, take responsibility, be yourself”

I just kept reading you will want to as well

Ad thanks so much for the advance readers edition from @SheSpeaksUp Be sure not to miss the Twitter Part for a chance to win a door prize "Win books and gift cards! Join me at the #ReadTheGirl Twitter party with @SheSpeaksUp on Tues 4/2 at 2pm ET

Velo-Cardio-Facial Syndrome, Volume I (Genetic Syndromes and Communication Disorders)

This Book has really helped me to understand the Medical terms and other stuff the doctor talk about.

Buy this book Velo-Cardio-Facial Syndrome, Volume I

With an estimated human population prevalence of 1:2000, Velo-Cardio-Facial Syndrome (VCFS) is the second-most common multiple anomaly syndrome in humans and almost all children with the syndrome have speech and language impairments that are generally recognized to be complex and difficult to treat. However, the authors of this new book contend that treatment techniques are not at all complex and perceived problem arise from a basic lack of understanding, and lack of education in graduate courses. To demonstrate and to provide clinicians with expert guidance, they have produced here a comprehensive combination of text and video demonstrating the clinical features of Velo-Cardio-Facial Syndrome (VCFS); the communication phenotype in VCFS; the natural history of speech and language in VCFS; diagnostic procedures necessary for assessing speech and language disorders in VCFS; the treatment of speech and language impairment in VCFS; and outcomes, demonstrated by video on an accompanying DVD.

 

Velo-Cardio-Facial Syndrome Volume 2: Treatment of Communication Disorders (Genetic Syndromes and Communication Disorders)

This Book has really helped me to understand the Medical terms and other stuff the doctor talk about.

Buy this book  Velo-Cardio-Facial Syndrome Volume 2

With an estimated human population prevalence of 1:2000, Velo-Cardio-Facial Syndrome (VCFS) is the second-most common multiple anomaly syndrome in humans and almost all children with the syndrome have speech and language impairments that are generally recognized to be complex and difficult to treat.
To demonstrate and to provide clinicians with expert guidance, the authors have produced a comprehensive two-volume set with a combination of text and video demonstrating the clinical features of Velo-Cardio-Facial Syndrome (VCFS); the communication phenotype in VCFS; the natural history of speech and language in VCFS; diagnostic procedures necessary for assessing speech and language disorders in VCFS; the treatment of speech and language impairment in VCFS; and outcomes, demonstrated by video on an accompanying CD-ROM to Volume II.
Volume II of this set opens with information of aspects of speech and language and the difficulties most often associated with VCFS. Authors also consider how these difficulties interact with each other. Chapter two describes the aspects of articulation and resonance, how they are best evaluated, and on surgical management. In Chapter three, general principles are outlined on how to make articulation therapy successful for children with cleft palate, VCFS, or both, many of which apply to language therapy and other behaviors, as well. The last chapter offers insights into prevention of the abnormal articulation patterns that tend to develop and how to guide children through stages of language development.
The DVD includes all images from the book, along with 80 video clips that present normal and abnormal conditions and illustrate anomalies in VCFS through nasopharyngoscopy and videofluoroscopy examples

 

Educating Children with Velo-Cardio-Facial Syndrome (Also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome) (Genetic Syndromes and Communication Disorders)

This is a book which I have found to be very helpful. Working with the teachers at my daughter school and in my personal life.

Buy the Book Educating Children with Velo-Cardio-Facial Syndrome (Also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome)

Velo-cardio-facial-syndrome, also known as 22q11.2 deletion syndrome and DiGeorge syndrome, is relatively new the genetic test to determine if a child has it has only been available since 1994. Educating Children with Velo-Cardio Facial Syndrome (also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome), Second Edition, effectively blends the thoughtful research that has transpired within the past 15 years with practical and current educational strategies to better meet the needs of children with VCFS and other developmental disabilities.
To first address the scientific information that is needed to understand the syndrome and the implications of current research, expert contributors present the results of studies involving brain abnormalities, language/learning profiles and psychiatric/behavioral difficulties. These valuable chapters are written in a reader-friendly manner to help parents, professionals, and teachers gain useful and necessary comprehension of the unique characteristics of the VCFS population.
The second part of the book is a practical guide to educating a child with VCFS from birth through adulthood. Divided into the various stages of development from preschool to adulthood, it includes information regarding the necessary tests special education teams should run, typical difficulties associated with learning, changes that occur with ability as the child matures (drop in IQ scores and increased learning challenges), as well as behavioral problems in the school setting. Each section includes discussions of the learning challenges and accommodations that can be used at school and at home during that stage of maturity. The authors also present meaningful advice on issues such as friendships, private vs. public school placement, job training, and other pertinent decisions that affect the VCFS child's everyday life.
For the second edition, the author has added fresh and updated content. A partial list of new material includes:
  • The most recent research and studies to make the text as up-to-date as possible
  • Expanded and enhanced coverage of bullying and the social/emotional aspects of VCFS
  • More information on common core standards and standardized testing for children with disabilities
  • Homeschooling and other placement alternatives
  • Executive functioning deficits and their impact in the classroom
  • Dealing with problem behaviors
  • Issues related to anxiety and school success
  • Cognitive remediation and new treatment strategies
  • New math and reading remediation techniques
  • Expanded section on the very young child
With its expanded content, as well as contributions from some of the most highly regarded experts in the field, Educating Children with Velo-Cardio Facial Syndrome (also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome), Second Edition is an essential resource for teachers, parents, physicians, and therapists of children with velo-cardio-facial-syndrome.