I'm so excited Mommies Quiet Place is offering gift guides items under $30

Easter is too close to Mother’s Day. We tend to focus on Easter then come Mother’s Day we don’t have anything to give out to our mommy friends we get so busy but if we plan and create the time to focus on gifting which is what I’m doing. I’m currently working on building sponsorships with brands.
On top of Easter and Mothers day I have Bella birthday she turns 12 this year and I have 3 other step kids who are young adults the older kids enjoy gift cards and dinners out but Bella’s 12 birthday I am trying to pull it off with a huge hit.

As you know I have been focused on working our budget and mastering the no spending thing. So many of our friends have encouraged us The majority of my website is mother's who come to my website I don't generate the kind of cash flow to hand out nice things to everyone. I can however send a mothers day card to those who sign up and send me an email. That's what I am doing this year for mothers day! if you have supported mommiesquietplace in anyway simply send me a message our our fb page and say I would like a card. Mind you these are cute email cards I'm sending out. With a cute photo of us that you can put up on your fridge. Our way of saying thank you.
However this year I wanted to give more of a guide filled with ideas that are appreciate by mom's who have kids with special needs. If you have products or services you would like me to help you promote (mothers day special only no costs) typically I don't do this at all or I charge a small fee. I know I will get my inbox filled with message request for free full product in exchange for a review at mandy22q@gmail.com and for this short time frame now until Mothers day I’m offering the special shoutout promotion you all know and love where you can learn about my friends who sell their products and services.

As you know mommies run on coffee so coffee mugs, coffee and accessories is the best and will make my top 10 must have lists that I am creating. Other drinking items as well tea and juice are also loved by the readers who enjoy reading my blog.

Toy’s is another big thing on our website teen or pre teen girl toys such as arts and crafts and DIys.

We all have those moms we see on our page who are hustling some kind of MLM product I am no exception I have friends moms and non mommy friends who sell wonderful fun items. such as pamperchef. others sell Avon, Mary Kay, toothpaste, home decor, cleaning supplies or food.

I have a special heart for those who create fun shops in Esty stores or I think it’s called deepop. I am always having so much fun learning about the fun items my friends share. I have hosted and been to a number of great parties

I'm your go to girl who can get the word out about your wonderful product. I love helping mom's out but I only do this once a year when I have free time. What you get form me is a social media shoutout with a mention of said product. You don't have to be a mom to partake because we all have mothers or know of a mom we would like to give a gift to.
Consider this your one chance to get the word out on my Instagram, Twitter and Facebook
usually I say no even to long time friends and family but now this is open to everyone and anyone that has a product. Why because it's my fun way I get to get creative and give back to those of you who have followed me on all of my social media platforms yep that's the catch! it's a win win really


Bella birthday is coming up in April and she has been eyeing a new cellphone and wireless headphones along with a ton of Mindcraft and squishies. oh and slime is still a thing so you basically get the jist if it’s on youtube such as jojo bows or those LoL dolls Bella wants them.

Bella loves testing out and unboxing things in the mail and her Birthday is in April so close to mothers day so I'm putting this out there now and if you see this post message me


mandy22q@gmail.com

Thanks so much and I look forward to working with you check out the products we love page and see the amazing photos I can take with my cannon ESO T6 rebel.
The below image is from a company we teamed up with to give them some love on their fun teepees. Bella loved it so much it was very easy to give a warm word of mouth shoutout.

I look forward to working with you in helping you step up your marketing word of mouth game while we step up our blogging game and spread the word out about a little known disorder called 22q.

If you don’t know what 22q is check out the what is 22q tab I explain it in a lot of details there.

We are also looking for monogram items I would love a logo on my laptop of the lotus flower. I’m working on bussiness cards, planners and pens I would love to add to the shopping cart ofr all of you. Its going to be a slow progress i’m not a young 20 something with a lot of free time I am a busy mom and wife and I’m looking to help others out for a short time. I might add this as a regular thing but the promo will end mothers day so I can get the mothers day gift giving guide out.

Thanks so much and don’t forget to leave links below of your stores so my readers can find your great gifts.

happy shopping everyone.


Bella loved the lunch cooler.

Bella loved the lunch cooler.

This is just one of the fun products we got in the mail to help spread the word. My daughter love checking the mail box another favorite was a necklace from an instagram friend of ours. This teepee was a big hit and got a ton of views. Bella loves playing with it in the summer on our deck

This is just one of the fun products we got in the mail to help spread the word. My daughter love checking the mail box another favorite was a necklace from an instagram friend of ours. This teepee was a big hit and got a ton of views. Bella loves playing with it in the summer on our deck

I'm sick of being a freak!

I am not always your ray of hope! I'm sick of being a freak, that is the disabled lady with abilities. Just screw the whole "dis" thing.  

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The past 48 hours have been hell. I am not going to sugar coat how awful living with this disorder can be it was a tough one to keep positive while waking up choking in my sleep on stomach contents. 

It was tough when my husband didn't understand what to do and watching him feel helpless and lost and not know what to do to help me while I felt equally lost and helpless. It was tough that this time my 10-year-old brought my puck bucket to me instead of me bringing her one.

The caregiver turned into the patient. This is not the first time either. On my older blog, I shared about my diagnoses the ups and downs. It has been 4 years since I had been in this kind of pain. I have had dry heaves, I have sleepless nights and always there stomach pain the doctors can't get rid of.   The pains from gasteroparies, not pains like when you're constipated it is painful pains like when you have the stomach flu and your period at the same time. What made this time so much worst was this time I had my periods during this ordeal.

I had stomach spiraling craps, I had dry heaves I had poops as large as my gut tearing out of my insides. I wanted to give up at one point I even asked Adam to help me end things said I was done. I was done with treatment I was done being an everyone ray of hope because I can wipe my own butt. I was done with everyone expectations of me being healthy because on the outside I look fine and so does Bella. Bella has cp I am done spewing the same public info and I am done with being anything to anyone else at that moment I was done mostly with being a woman who has periods. Not eating can take it toll on your emotions I was on 48 hour liquid diet at this point and I was hungry and scared. I get scared and angry just like someone of you who look up to me. I don't have ray of hopes when I puke for days.

  Sometimes my website might be a cheerleader saying you can do it but I need to have a cheer leader safe place to share with my friends that hey I had a major flair up tonight because I do not have the energy to tell my story 100 times to 100 different people. It is easier to just post it here and if people want to hear from me then they know where to find me.  I have not written much lately because I didn't know what to write about. I was suggested by Adam that maybe I should write about this. So why not. Here is fact and reality. Now I don't live like this daily in fact this past May we ran a 5k but today is not that day. Today I couldn't get out of Bed much while Adam had to help out. These days are not so close together anymore and I can manage most days with this stomach disorder.

Living with my stomach after gastroparesis is not easy and I'm not healthy as you like to think I just don't have time to sit and tell everyone my poor me stories because I am too busy trying to get back on track on routine after a flair up on par with my family again after an adjustment of another new treatment plan. For me taking care of myself is my biggest hurdle self-care is not something I like to do. I know how to care for others I don't know what to do when it comes to caring for myself really neither do most doctors because they have not heard of this disorder or the chromosomal disorder I have. 

I just make just when you think you managed it and got it under control Bam it bites you in the butt. I wake up choking in my sleep throwing up on the foods I eat. I have to rest and take care of myself. I don't do this well. I had a moment of being lost and hopeless feeling frustrated and scared. I too have my weak points I just don't usually share it all because people gossip and form their thoughts on what they hear from others.  Yet when I post my post I hear crickets Truth life is a rollercoaster!

Adam my husband is quietly there by my side helped get me a bath and helps send Bella into my room with a puke bucket I am 34 years old and had to have someone help me!

It not easy every day. I enjoy the easy days a lot more and I don't share the poor me why m post because I need positive I need to see positive while in the negative spaces.  I also know that other people need to see that I get it and that they are not alone because being there experiencing something alone sucks. Not having answers to questions sucks. Not knowing sucks. I am still there some times. I may know about 22q but this disorder I have had been dealing with for 4 years apparently needs to teach me I need to open up more and reach out to others. So I'm reaching out to all of you if you read this don't let me hear crickets. let me know you read this post. Thanks for your support and I am not throwing up today, in fact, I have a doctors appointment, later on maybe I am not done with treatment plan but sometimes it needs adjusting because what works for others with this disorder does not work for everyone.

How to handle doctors visits with special needs kids like a boss! or our trip to U of M

 Hello everyone,

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I am going to dive right into this one as I am excited to share the news.

 The reason for the doctors visit is Bella has 80% hypers-nasal speech means when she speaks air goes up her nose is what the test showed at the last doctors visit.  

In Aug, in fact, we were scheduled to go ahead and correct this issue she has with air by fat graphing which involves fat from some part of Bella (I wasn't sure where they were going to find any fat on her)  I was wondering if we should wait it out until she passes puberty or just go ahead and do it now and get it over with.

The speech doctor at the clinic had to perform her speech test on Bella by asking Bella to say funny sounding sentences. Bella had to say words while pinching her nose, followed by the breath o her breathing on(magic mirror thing a ma jigger) I am not sure what it was called but it goes under Bellas' nose and you can tell if there is air in the mirror if it clouds up or not. Bella had no air on the mirror this time.  Last time the mirror was all cloudy.

Bella then had to sit with a fun looking space helmet on her head and speak into a sensor while she said the same funny worded sentences. Bella scored a perfect normal on the test. 4 times. Normal from 80% is something only short of a Miracle.

I don't even think it sunk in yet. Bella was thrilled and thankful that Bella did not have to have a camera go down her nose into the back of her throat.   It was a shock to both of us no surgery needed  Bella will go back for a team visit soon as they can fit us in to talk to the team about our next treatment plans.

Below is some info on what Velopharyngeal or for short Vpi is

 

 

 

 

 

Bella playing in the play area on the 8th floor after to burn off her energy before we headed home

 

I know I asked all of you to visit my website to hear about this trip because it is such great news it was difficult to talk to 100 different people and I can not keep up with that many questions. If you do have any questions feel free to leave a comment on the blog in the comment section below. 

Thank you for reading. Bella looks forward to seeing your likes, comments, and shares and she said she is super excited she does not have to have surgery.  Bella is a 10-year-old girl with 22q and cerebral palsy. I am a mom who also has 22q. This is our journey and I am sharing to help others out there not feel so alone.   Don't forget if you like it subscribe (Purple button top right of the homepage)

Until next time take one second at a time.