a blog about aspiring to live well in order to be a better example for my kids! It features self improvement, self care, health, and family.

National Public Health week #NPHW raise awareness for people living with rare disease such as DiGeorge syndrome 22q11.2 deletion syndrome

National Public Health week #NPHW raise awareness for people living with rare disease such as DiGeorge syndrome 22q11.2 deletion syndrome

This week is National Public Health Week. During #NPHW, raise awareness for the 25-30 million Americans living with a rare disease by sharing the facts! Learn more about rare diseases from the NORD fact sheet here

https://rarediseases.org/wp-content/uploads/2019/02/nord-rareinsights-rd-facts-2019.pdf

Some Dos and Don’ts of communicating with patients with rare diseases

Some Dos and Don’ts of communicating with patients with rare diseases

Influencer marketing

Influencer marketing