March 26 th International Epilepsy day
Hello friends, When Bella was younger she has had some seizures first was absent seisures then we did a huge amount of sleep studies and video eegs both awake and sleep deprive. We have had a lot of test infact during one of the testing I had an awaking moment. I was sitting in a room next to the cancer ward and crying poor me stories and feeling sorry for myself and scared of the future my daughter would have. Then a little girl with a bald head come out and I lost it and broke down into tears. I had my ah ha moment that it could be worst and she will get better and now she is turning 12 I am forever greatful she has been seziure free for 5 years. Epilepsy is something we both had had. When I was younger I had seizures infact one of my fathers girlfriends told me that I had seizures and he ingored them and wouldn't take me to get test or treatments. I feel that is why I go out of my way to make sure that Bella get's the best quality care I can get for her.
March 26th marked International Epilepsy Day, also known as Purple Day. There were over 1,400 people talking about #PurpleDay this year, with almost 1,700 public posts across social media. Did you #DeclareYourRare? Join the conversation year-round with #epilepsy and #epilepsywarrior!
While epilepsy itself is not rare, there are many rare forms of epilepsy – and many people who experience seizures as part of their rare diseases. As with all rare diseases, you are not alone! Alone we are rare, but together we are strong.
Here are some more epilepsy resources for you:
Purple Day Resources Rare Epilepsy Network Rare Epilepsy Syndromes