Making money blogging and summer fun

Bella did great with the 11 year check up and shots. She didn't cry she hold my hand and breath out the pain and fear of the poke like a champ. 64 pounds and 4 foot 7.


We now have a case manager who is helping with setting up appointments to try and make her absences 50% less then she had this school year.

I am also getting an advocate to help with the transition from 5th grade to middle school for this up coming school year. Our goal is to not have any appointments for for Bella school to call on Thursdays saying she has a temp and is having panic attacks. She been doing amazing this summer not one temp or panic attack. She gent's some cousin time we are having a sleep over with her cousin and they are currently watching 101 dalmatians on Netflix.

Last summer so so crazy and busy I couldn't even keep up with my apartment this summer we have been working on organization and minimizing .

Today Adam and Bella worked on Bin storage system and setting up her bedroom to be more organized and donated a ton of toys. I have to say this summer is going so great I even have time to work on writing my book. I had some ladies at a conference I usually attend pray for me to find time to write and I have so much time I don't know what to do with. I'm excited to see where this summer will take us.

Yesterday we had a tour of Adam new work a full time non contract position which a lot of you had prayed for him to find the right fit job. This job is so perfectly fit for him and the people he works with are great and he has his very own office with a nice kitchen to keep his food from home we can make him healthy meals for work and he is an It administration. All good things come. As all good things come to an end sometimes we no longer are income eligible for ssi. My goal with my website make some money to make up the difference or at least cover the cost of what I pay to keep the website going.  I have a few places where we signed up for our blog to be sponsored and I look forward to working with some Amazing brands. I have a few book launches I am apart of and I can not wait to have my very own book launch team. I have to finish my book first. I have 1st part done the hard part where I talk about my past. The second part is my healing process I'm struggling writing it down but glad to do so. It is very therapeutic for me.

Thanks so much for reading my blog and watching it grow into this beautiful website I couldn't have done it with out all of you supporting me/us.

Here is to new adventures and remember choose kindness.


National Birth Defects Prevention Month

 It’s Cervical Health Awareness Month, Glaucoma Awareness Month, National Birth Defects Prevention Month, National Blood Donor Month, and Thyroid Awareness Month. Do any of these health issues resonate with you? Talk about it. 

As a women who has 22q11.2 deletion all of thees awareness effect me. Other then Glaucoma which I do not have. I have a birth defect the 22q deletion I write about it is a small piece of genetic material dna that is missing, I am a blood donor I am a type 0 the kind that can give and not recieve unless you are a type o so get out there and donate any amount you can. Thyroid awareness month I have to say I had some signs and my mother has Throid issues she does not have 22q but it is common among those who have 22q and my Throid is functional at normal levels I have been tested and there is no need to freak out or be concern after until I get a little older and hit full on menapause. having a gentic disorder of any kind brings all kinds of health issues and I wanted to share that is is also cervical health month as cervical cancer was a scary concern when I was a teen but it so happen that I was okay and didn't have cancer. I am glad there is testing for all of these different things and awareness but sadly when you mention 22q people still are not aware not even doctors or nurses know what I am talking about when I bring it up. Awareness is great but knowledge is key.  That is what kept me writing and blogging about our disorder all of these years and I will keep blogging until you hear 22q and are just as aware about it as you are aware about down syndrome.  That's a post for another day