Making money blogging and summer fun

Bella did great with the 11 year check up and shots. She didn't cry she hold my hand and breath out the pain and fear of the poke like a champ. 64 pounds and 4 foot 7.

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We now have a case manager who is helping with setting up appointments to try and make her absences 50% less then she had this school year.

I am also getting an advocate to help with the transition from 5th grade to middle school for this up coming school year. Our goal is to not have any appointments for for Bella school to call on Thursdays saying she has a temp and is having panic attacks. She been doing amazing this summer not one temp or panic attack. She gent's some cousin time we are having a sleep over with her cousin and they are currently watching 101 dalmatians on Netflix.

Last summer so so crazy and busy I couldn't even keep up with my apartment this summer we have been working on organization and minimizing .

Today Adam and Bella worked on Bin storage system and setting up her bedroom to be more organized and donated a ton of toys. I have to say this summer is going so great I even have time to work on writing my book. I had some ladies at a conference I usually attend pray for me to find time to write and I have so much time I don't know what to do with. I'm excited to see where this summer will take us.

Yesterday we had a tour of Adam new work a full time non contract position which a lot of you had prayed for him to find the right fit job. This job is so perfectly fit for him and the people he works with are great and he has his very own office with a nice kitchen to keep his food from home we can make him healthy meals for work and he is an It administration. All good things come. As all good things come to an end sometimes we no longer are income eligible for ssi. My goal with my website make some money to make up the difference or at least cover the cost of what I pay to keep the website going.  I have a few places where we signed up for our blog to be sponsored and I look forward to working with some Amazing brands. I have a few book launches I am apart of and I can not wait to have my very own book launch team. I have to finish my book first. I have 1st part done the hard part where I talk about my past. The second part is my healing process I'm struggling writing it down but glad to do so. It is very therapeutic for me.

Thanks so much for reading my blog and watching it grow into this beautiful website I couldn't have done it with out all of you supporting me/us.

Here is to new adventures and remember choose kindness.

 

It all started when... (storytime)

It all started when…

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2005 I moved and met my husband got a call that I needed to be genetically tested because my father and siblings tested positive for 22q deletion syndrome. I wait and wait then...

Imagine getting a phone call from your doctor after a genetic test that it was positive for a deletion in you’re dna. That moment you are told there is something fundamentally wrong with you and your world turns upside down.

Confused because you look normal like the other people in your work place and there isn’t anything that sands out. Learning you were indeed born to stand out on a world that is unkind to people who are different only it’s not si-fi it’s you’re new reality.

Imagine as you try to pull the pieces of the puzzle of your own life together that didn’t make any since that this test is real you give birth to a beautiful child who also has the same genetic disorder. As she grows up you learn more about yourself then you can ever dream of and meet new people along the way who help you understand and shape your life for the better.

My story is about

The journey of our life living with multiple health issues and having a genetic disorder called 22q11.2 deletion syndrome (DiGeorge) or 22q for short My story is about how one family copes with 22q11.2 deletion syndrome, cerebral palsy our daughter has dual diagnoses and other health issues that come from having a genetic disorder.

Read on for insight and advice from my personal first hand experience and connect with other moms who've been in the trenches.

Mommies Quiet Place specializes in creating an easy to understand ways of coping with living with many different health issues that come from having 22q11.2 deletion syndrome (DiGeorge) we share our journey of the good, bad and the messy.

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