Pain Management and Diet changes?

Hello friends,

Today I am sharing about my personal first hand experience with diet pain and 22q

There is the typical treatment’s the Go to for pain.

waiting at one of the many dr visits inserts in her shoes you couldn’t tell she wears them

waiting at one of the many dr visits inserts in her shoes you couldn’t tell she wears them

The Ice method for example when you hurt your finger from playing basketball Ice, rest, evelated .

The days when tired muscles are sore and tight we go to the Lots of water. Hot Epsom salt baths. Avoid inflammatory foods and eat anti-inflammatory foods. Cut dairy, sugar and white flour, maybe wheat completely. Gentle stretches.

For topical pain's for simple inflation sure.

Medication and Diet does not replace a missing piece of Chromosome that's DNA strand complete wiped out of our system. The strand 22q is the communicator and connector for the cells that tell our bodies how to function. such as Down syndrome is an addition Chromosome. Diet alone does not heal all nor does it heal the mild cp my daughter has or the gasteroparies I have.

Daily pain is always going to be there. We have an invisable chronic illness such as these and migraines and emotional pains even. Diet alone does not cure all as much as we hope.

It can help with some things of course like constipation when it’s not a delayed emptying of the stomach like gasteroparie being the under line cause.

As you know I love testing products and services but. no products or books our cures are there for us. Our symptoms are custom made because no two people with 22q are affected in the same way.

We simply just try to make life as comfortable as we can and some of us pull of not appearing "sick" so well.

One other example is I make a famous detox smoothies a green one when she has constipation issues and other issues when her body is fighting off infections I add lot's of 'other' mommy secret's in the smoothie so she will take them. I'm not against nor did I imply I was.

. The smoothie I share infact It's a popular hit on my website. I found some I liked and others did too. If our convo reaches out to others so be it. That's why I blog to help others out there not feel so alone like I have had to.

I also use those special shoe inserts for Bella afo's chipmunks they went from leg braces and extreme pains to finding the right medication's which I won't list here because last thing I want to do is tell any parent what to give their kids for xyz. I only share what I love and enjoy. I am lucky to have a large amount of caring supportive Dr's who understood 22q and others who didn't know was interested in learning about 22q and the mild cp my child has. (complications from birth as I also have 22q) I was tested after my father was tested and my 3 half siblings were tested after my step mothers test was negative theirs was positive. One of my siblings passed away when he was six. I seen the good bad and ulgly of this syndrome.

Afo insert’s chickmuncks

Afo insert’s chickmuncks

You are so spot on if you said treating a child with 22q is not rocket science to those of us who live with it and have children with it ect. To the outside world they can't even fathom the pain emotional and physical.

Us as parents and to those of us who have 22q face. All of us who tested positive in our family all have had hypocalciuma and low iron was major issues in our family. We did it all to see what helped and to a point diet changes worked as well as it could take it. No amount of calcium based products ie milk would help ex except the treatments of caltrio and ferinsol hand cramps and leg cramps and tremmers passing out which I have experience all of it was part of the course. meds diet or not. Diet sadly was not the only fix for them as well as for Bella and myself What I mean is there are so many "Plexus" or other fad MLM diet's I would have typed that up as well but not many comment on the post's I share so thank you and I appreciate you and the time you took to write that up.

There that are those ever popular claim to fame cure all end all like oils yes and other MLMs that say this is the fix! been there tested all of it. I love product testing. Of course some help aid in reduction but there's always a pain of some sort. My daughter sees me and is being shown by example how to mange reduce and use all that is at shown to her in Pt sessions, Ot and speech as well as many other but when she is in the class room mainstreem with an IEP it isn't until the teacher sees Bella in action with her Adhd symptoms such as a day with out her medications for say a med switch do they go oh she does have something different about her then the other typical children and needs support. which she takes meds and yes diet changes and has a tool kit of coping skills she uses.

Even as I sit here and type there is a pain in my stomach from gasteroparies. I just don't always post about it. Like when I was younger because no one cared to hear me. I was a child with 22q back when I was 21. now my daughter is 11 I'm 36 just had my birthday yesterday. I not only am a parent, sibling and friend to those who have 22q I live with it personally. I'm thankful that diet changed has helped and is apart of our coping skills tool kit. :) Have a great week. We have a snow day here hope the weather is warmer where you are at :) blessings friend

I did the Daniel fast and here is how it went

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The Daniel Fast Food List:

What you can eat:

All fruit – fresh, frozen, dried, juiced, or canned.

All vegetables – fresh, frozen, dried, juiced, or canned.

All whole grains – amaranth, barley, brown rice, oats, quinoa, millet, and whole wheat.

All nuts & seeds – almonds, cashews, macadamia nuts, peanuts, pecans, pine nuts, walnuts, pumpkin seeds, sesame seeds, and sunflower seeds; unsweetened almond milk. Nut butters are also included. All legumes – canned or dried; black beans, black eyed peas, cannellini beans, garbanzo beans (chickpeas), great northern beans, kidney beans, lentils, pinto beans, and split peas.

All quality oils – avocado, coconut, grapeseed, olive, peanut, sesame, and walnut.

Beverages – distilled water, filtered water, and spring water. Other – unsweetened almond milk, coconut milk, rice milk, or soy milk; herbs, spices, salt, pepper, unsweetened coconut flakes, seasonings, Bragg’s Liquid Aminos, soy products, and tofu.

Foods to Avoid on the Daniel Fast: All meat & animal products – bacon, beef, buffalo, eggs, fish, lamb, poultry, and pork.

All dairy products – butter, cheese, cream, milk, and yogurt

All sweeteners – agave nectar, artificial sweeteners, brown rice syrup, cane juice, honey, molasses, raw sugar, syrups, stevia, and sugar.

All leavened bread & yeast – baked goods and Ezekiel bread (if it contains yeast and honey).

All refined & processed food products – artificial flavorings, chemicals, food additives, preservatives, white flour, and white rice. All deep-fried foods – corn chips, French fries, and potato chips. All solid fats – lard, margarine, and shortening. Beverages – alcohol, carbonated drinks, coffee, energy drinks, herbal tea



I Hope everyone is staying warm.

I decided to write a blog post while ms Bella was playing video games. Some of you have been asking me where have I been? why haven’t I been interacting or accepting friend request on my personal Facebook page and why I have not posted as much lately.

I did the 21 day Daniel fast that’s 3 weeks if you are needing a visual.

The list of foods above and the listed website is what I reference to while I did the fast. I already am limited on wheat’s and some of the items that are aloud so I also fasted wheat and stuck with dairy only in coffee

I also didn’t give up coffee but limited myself to 1 cup a day and during the fast I ran out of k cup and ended up using what I had in coffee can’s and broke out the old peculator remember those? It felt so odd brewing a cup of coffee in the single peculator. At the time of the fast I had prayed about our family financial situation cause let’s be honest we were at the point were we made enough to get cut off any assistance from even ssi and next month medicaid is even suppose to stop.

I have to admit I panic when the financial hits kept coming.

Before the fast we had the car that needed repairs then at Christmas two weeks after we had to repair the locks on the front door and the car our home had been broken into someone took off with my husbands keys coat and two laptops we are thinking it was a homeless guy living in our apartment complex laundromat we had called the cops and filed a report and all has been okay since. We went out with my husbands work to an amazing all expense paid for party and due to my husbands position being new at the company it didn’t fit into this years budget and he was let go.

So when you do a fast and pray expect things to unravel and come undone but only for things to make room to aloud doors that were once closed to be open.

. The events all taking place then Adam loosing his position under no fault of his own just that his and a few other positions did not fit the budget for the company he was working for which sucked Adam was finally happen enjoyed his coworkers and came home a lot less stress. The nice thing is that they paid him for two weeks and and they even put him up as laid off and paid him for two weeks while he finds work.

During the two weeks we still fasted we didn’t go out and buy extra we didn’t have the extra funds and we made due with the things we had in the house I got creative with meals and we used up the can goods the baked good and all the things I stocked up on.

This was all during the fast while we were praying for increase in our fiances. The goal was and still is 35,000 for any position my husband get’s which would put him at around 17 dollars a hour in his field full time.

I am looking forward to saying Adam found a job that pays the amount above or more with benefits and full time. I think it will happen within the next few weeks.

I had been praying for supernatural doors to be open I have been claiming in Jesus name for Adam to get a position that paid more but the moment he was let go I kind of already knew and we were prepared in a way. Adam has had 4 successful interviews now and we are sticking with the worlds tightest budget.

I was fearful of admitting Adam had been let go from another company to my friends and family it’s a matter of pride I think but because he was part of the big layoff with another popular company my husband works in the technology field and does administration work for It that’s what he went to school for that year he was let go on my birthday and what sucks is this year it happen just after Christmas.

I’m sure God’s hand is in all of this but I want to put my own hands on all of it.

I want control and take over. Adam had a great interview today and that makes interview number four. I am just thankful we have been sticking to a budget the evil word in my mind the word budget and a no spending freeze had happen this month really allowed me to see how far we have come as a couple and as a family. This kind of thing would have other wise left me paralyzed in fear but instead we keep moving forward in faith and are at peace that this is the kick in the pants needed to let go and increase our financial income.

I have only mentioned this to a few handful of our friends it’s still in the new shock stage but we are keeping our spirits up and moving forward. Adam had like I mention 4 interviews and we are awaiting to hear a call back from one or all of these places.

I think any company would be lucky to hire him he works hard and is a great provider for our family but we keep hitting these road blocks we need a income that is stable where contracts are not a option neither are temp agencies.

He’s applied to well over 50 places and he’s getting in three or 4 request a week for phone interviews.

the fast has really open my eyes to what is important sure the nice extra are great to have but when you have a roof over your head, clothes on your back and food in your belly no matter what the income that’s a blessing all of it’s own.

I have read about so many others who are working in government jobs and are having to go to the food banks we have had to go to a food bank or two in the past and understand what that feels like.

We have the support of the other kids rallying around us and helping as needed and our rent is even paid two months in advance we even are doing the Dave Ramsay budget where every dollar has a name. It’s not easy to think this all happen because I prayed for something and was let down with broken promises and un answered prayers but I think this is a way that doors are opening and we are going to be able to bless others with our income.

I’m looking forward to any of the places Adam interviewed with and call back.

We have even come up with ways to sell some of the items in our home that has been cluttering up or apartment de cluttering cleaning I call it anger cleaning.

The landlord is coming in and is going to redo our bathroom for us there was some mold I found while I was cleaning out things and doing a deep clean the baseboard and the ceilings need to be replaces and in Feb that will all be taken care of. Feb is also my birthday month I turn 36 that’s a post for another day. Valentines day is coming up I already have valentines day cards for Bella class from what I got on clearance last year

I also have been entering contest giveaways and filling out survey’s online earning some fun new products to test out. A friend of mine has me filling out all kinds of things for freebies that could help in the long run and I am getting back into product reviewing again.

I have not wrote a blog post like this one in ages because we have been doing this fast and just one thing after the next has come after us. I have decided to do protection prayers around my home and even have been lighting candles and doing all I can to clean the air to help bless our family.

Today I took some time to interact and become social I asked for emails for Bella's donations and she got a overwhelming successful amount of 20 emails. You guys are amazing always there to support us. Bella has hoops for heart that she is trying to raise funds for and has a list a mile long of the things she wants and desires.

I have been avoiding going into stores unless needed because I know we would end up spending money. I have this fear of being like my mother dependent on someone else and that’s some demons I need to work on and allow that this whole thing will work out for the greater good of our family. It can’t get any worst. Universe I am not testing you here.

I am just simply expecting a financial windfall while he looks for work or a break where we can catch up and breath and relax. I our savings is now our income and we wait with baited breath if he has been hired from one of these places he has interviewed with.

I took a social media fast as well for 3 weeks on top of financial spending fast.

I just wanted to say hello with all of you let you know what there was a ton less stress when I got online and used social media as a way to decompress and not go out of my way to fix everyone or to solve others issues. I had to figure a way to stay connected with my friends with out giving to much info to others who want to use what I share against me.

I no longer care what others think. I’m going to post and if people do not like what I share they do not have to read.

I discovered who my friends where some pestered me and said hey you were are ya? others texted or even gasp called me and had a real conversion with me. I love and thank you all who do for that.

As high amount of traffic I have on my website I am taking my power and control of it back

I’m sharing to reach at least one other person who might need to hear what I have to say. I also sometimes just need to vent with a post that allows for more then 150 characters

I took advantage of the snow day and just zoned out for a hour or two possibly 3 and I cleaned up my Twitter in fact it’s deleted now, I am cleaning up my Instagram and I cleaned up the likes on my Facebook page. I also am trying to just see where spirit will lead me today.

I Hope everyone is staying warm. We had a snow day. I took some time to interact and become social I asked for emails for Bella's donations and she got a overwhelming successful amount of 20 emails.

Most of you even asked me how things are going and we had great catching up kinds of conversions.

You guys are amazing always there to support us. So I'll never shut down the website. I might pop away from time to time to reflex on life and pray or meditate.

I took a social media and even a food kind of fast meaning I only interacted with the people I had to stay in touch aka my mother inlaw and grandma or the would pull me though the computer screen with their canes lol when it came to food and drinks I stuck with fruits and veggies and fish.

Adam and I did the fast together we didn’t make the kids do it but they ate our dinners with us. After the fast was over we celebrated by having McDonald and the cheeseburger I had just was not as satisfying as I had hoped. Bella had her first big mac and realized she was to tall to play in the play area. Bella is 11 and is in the stage of being to big for somethings and not old enough for others. Her new favorite things to enjoy is blow drying her hair and chopsticks we had a ton of Asian inspired soups while we did the fast and Bella love that we can have a healthier kind of “romen noodles” and if I know me you have probably heard of the romen noodle budget story when I was in college.

I just wanted to say hello with all of you let you know what there was a ton less stress when I got back online and used social media as a way to decompress and not go out of my way to answer everyone's email fix everyone or to solve others issues.

There is a huge need for advocates and mentors for this disorder and I don't take that lightly. I will always be a email away it must just take longer to respond back. I am always so shocked when others say you inspired me to help others and share my story.

I am honored and really have no idea where to go from here.

Things have been good health wise so I have not had many blog posts that are medical related. We see a therapist once a week and all is well.

The job hunt is going well Adam will have something from one of these places I am sure within a month our bills are paid God has provided a way to provide.

I might just keep fasting not to the extreme that I was but it that eating this way life is so much simpler I used what I had on hand and used up the products I have in my home. I now have to stock up again on supplies such as goodies, snacks fruits and veggies.

during the fast I have gone though my emails finally and discovered that Mommiesquietplace is not quiet there is a large amount of you who are seeking to hear my voice and that means the world to me. Thank you all so much. More blog post in the future. If you have any topics or request you would like me to write about shoot me a email or send in the comments below.

Having a child with special needs is a lot of financial stress the best advice I suggest is stick with a budget and perhaps if you are doing the Daniel fast pray for something smaller then financial increase pray for guidance or wisdom and discernment.

Always be careful what you pray for or you will be tested. The last time I did this I prayed for patience.

I am still learning my spiritual gifts and I am learning how to just be at ease with things and go with the flow. I am learning to be content in the mess. I know one day my mess will be my message.

Thank you for reading.


A rambling un edited blog post just some writing so I could share with friends what all have been going on.

https://www.livestrong.com/article/347609-information-on-the-21-day-daniel-fast/

https://www.ibelieve.com/faith/what-is-the-daniel-fast.html

hugs Amanda Ripsam owner of Mommiesquietplace

Genetic conditions that affect mental health?

Genetic condition that Affect mental health?

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 I am 35 I have my 11 year old I have been doing a lot of self-reflecting and kims questions couldn’t have come at a better time in my life. .22q is a total body disorder. It effects from head to toes.
Life can be a lonely place for a mother too, no one really knows what you are going through, until, that is, when you meet someone else in the same boat. It’s a huge relief to connect with other families, other mothers who have had the same experience in my case there is no boat for me. I don’t have many others who are adults with 22q and have children with 22q.
I don’t really fit in. I had to make peace with the fact I was born to stand out. Bella and I are struggling with the same daily concerns as you are but we don’t get that sense of a ‘new’ family when we join support groups. I had to create my own.
 A few years ago a friend and I started a rare genetics support group that met up locally in a Mcdonalds  
I shared how I passed out once at a children’s birthday party. Where my daughter saw me curled up. I ended up in the hospital  few times having my stomach pumped in what I now look back and see was my cry for attention and help because I didn’t understand at the time what was happening to me why I was throwing up and passing out when the world became overwhelming.
Stress and panic did a number on me. Being a new mom is fighting but being a mom to a child who has the same genetic disorder that I have was down right scary. What kept playing in my mind was would she be just like my siblings who have 22q and much more sever conditions from 22q would my child pass away like my brother did while he was a sleep. I had so many questions none of the so called experts could answer and I had to become my own expert.
 It put me in the position I am now with a understanding that not many others have from all perspectives mom adult sibling of someone with 22q I seen the belly of the beast sort to speak but I’ve also seen hope and others living with it and not even knowing about it like myself until I was 21. Sure I appear fine now as does my child but that came with a lot of hard soul searching, group and individual therapy sessions that included exposure therapy, eft tapping and cbt as well as dbt skills. writing journals and dumping out old thoughts for new ones and new truths and discovering my worth in God
 only now looking back that I can see the huge emotional and psychological toll that loving and caring for a child with special needs can have on a family.
 I had to learn my limits. learn it was okay to not be okay ]Mental health is part genetics the other part is choices we make and the effects those actions have on others.