Blog Challenge #4: You Are the Teacher
Write a blog post sharing
write a post in a Q&A format that answers a popular question you get asked frequently
This question should be one which contains a misconception that really annoys you. Use this as an opportunity to educate your audience on expectations!
The most misconception that is out there is adults with this disorder will have mental health issues and will have trouble living fully functional lives.
The question I get asked often from parents, are looking to know directly from an adult with this disorder is how well will my child function as a adult?
This question alone does not annoy me. I am a inspiration to a answer to this question and so are so many of the other adults I have met online. The thing that bugs me the most is the research that is put out on the internet about adults. Of course parents are going to be alarm if you tell them that their child will hear voices in their heads when they are older. I can assure you hearing voices is not a issue with any of the adults I have personal known and met online. I am not saying that there are not adults who do hear voices but the fact that I have met well over 50 other adults with about 4 or 5 of them being in their 60s the data is alarming and mostly inaccurate.
The research done is basked on adults who do hear voices and when the research team discovered some of the adults who hear voices do infact have 22q11.2 deletion the misconception started to take a strong hold and putting fear in parents every where. I am sure there are the more sever cases of this disorder who do hear voices but to jump to the conclusion is frighting to anyone.
I know more adults who live fully functional lives with this disorder then I do who cant live fully functional lives. Some of the adults I know do need assistance but the adults who have this disorder are often dealing with multiple medical issues like myself but with self care and self education and self advocacy we manage well. A lot of us are even raising family’s of our own. I know this with out a shadow of a doubt that must of us adults with DiGeorge 22q11.2 deletion syndrome all have different symptoms from one another. Sure some of us can relate to having a few of the same issues and it’s nice to be able to talk to others who have lived a life with this disorder who can tell the parents of children with 22q11.2 deletion that being a pro active parent and making sure you take a breath and take time for self care and not to overly stress about the future but to think positive and focus on the health issues in the here and now.
What’s a source of confusion within your business that you can address in today’s post?
What is an question you get asked *a lot*? What’s a source of confusion within your business that you can address in today’s post?
I often get asked if my blog is an awareness blog but it is not. My blog is to share my story and help others be their own advocates by shaving information resources and encouraging others to seek their truth and share their own stories. My blog is to help inspire other people who have children with this disorder to take one day at a time and to enjoy their children even with all of the health issues. I hope to bring compassion to something so unknown and scary for others.
children, teens and adults are a blessing and are so worth it.